About Me

Our Avery was diagnosed at one month of age with Cystic Fibrosis (CF). CF is a life threatening genetic disease that affects the lungs and digestive system. We are working hard to find a cure. This website will keep you up to date on Avery and our fundraising efforts for the Cystic Fibrosis Foundation.

Thursday, December 8, 2011

We are packed...

Avery's cough isn't better...and is getting worse.  After talking with Mike, another CF mom (thank you Rebecca!) and much internal debate I called the CF clinic to let them know Avery's cough is getting worse and we are ready for a "tune up" if he thinks it is necessary.  We are scheduled tomorrow to see him at 9:30.  They asked us to pack our bags in case. 

If we are admitted we will be in for 10 days.  There will be a lot fun activities and performances at Cooks, so we will have fun with it.  Avery is excited and she is making sure she can bring all of her favorite things. 

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