Last night Avery was not looking so good. Her eyes were glassy and red rimmed. She was coughing so much that she was whining that it hurt. I told Mike if she was still like that in the morning I was going to to call the dr and we would be admitted. She surprisingly slept pretty well. She has been up for an hour this morning and looks so much better! She has coughed a handful of times, but no whining. I am very hopeful the steroids have started working and are giving her body that push it needs.
Thank you to everyone for their kind words and prayers. This can be very scary for us and it is nice to know we have a great support system.
Wednesday, November 30, 2011
Tuesday, November 29, 2011
Our Visit
Our Dr C was okay. Avery weighs the same amount as she did two months ago. Not bad...but not good.
He was more worried about her cough. He gave us the choice of hospital stay now or wait another week to see if some steroids would clear it up. I went with the second option. So steroids start (as soon as she wakes from her nap) and our TOBI treatments start. We have until Tuesday (our follow up appt) to get this nipped in the bud. We are hunkered down at Casa Gray and will be cancelling any and all engagements as to focus on Avery's health.
A hospital stay would be very unfortunate. This is such a fun time of year with parties, decor, and cheer. But if we do have to go in the hospital we will make the best of it. And I bet Cooks has some great programs for the kids during this time of year. We will keep everyone updated.
He was more worried about her cough. He gave us the choice of hospital stay now or wait another week to see if some steroids would clear it up. I went with the second option. So steroids start (as soon as she wakes from her nap) and our TOBI treatments start. We have until Tuesday (our follow up appt) to get this nipped in the bud. We are hunkered down at Casa Gray and will be cancelling any and all engagements as to focus on Avery's health.
A hospital stay would be very unfortunate. This is such a fun time of year with parties, decor, and cheer. But if we do have to go in the hospital we will make the best of it. And I bet Cooks has some great programs for the kids during this time of year. We will keep everyone updated.
Clinic Visit
It has been a long time since my last journal entry. This is always a good thing...that means no issues.
We are headed to Cooks today for Avery's big yearly check up. She gets a chest x-ray, blood work, and a pulmonary function test (when she gets older). I am a bit nervous about today's visit. Avery started a cough on Saturday and it doesn't sound good. We have increased treatments to 3x a day and it is not doing better. She had a rough night's sleep tossing and turning. She doesn't have a fever so that is good. We shall see.
Mike and I also made the decision to stop pumping her with formula. The reason being that we want her little body to tell her when she is hungry. She has had her feeding tube since she was 10 months old. We thought maybe this was a leading cause into her not eating enough. We have seen a little improvement, but my gut tells me the CF clinic will say it is not enough and ask us to start pumping again.
Avery is so excited for Santa, but she does say, "I am a little shy to Santa." Meaning, don't put me on that guys lap again. Every year she throws a fit, yet we keep going back! We are such mean parents!
Hopefully today is uneventful and we won't post again....
We are headed to Cooks today for Avery's big yearly check up. She gets a chest x-ray, blood work, and a pulmonary function test (when she gets older). I am a bit nervous about today's visit. Avery started a cough on Saturday and it doesn't sound good. We have increased treatments to 3x a day and it is not doing better. She had a rough night's sleep tossing and turning. She doesn't have a fever so that is good. We shall see.
Mike and I also made the decision to stop pumping her with formula. The reason being that we want her little body to tell her when she is hungry. She has had her feeding tube since she was 10 months old. We thought maybe this was a leading cause into her not eating enough. We have seen a little improvement, but my gut tells me the CF clinic will say it is not enough and ask us to start pumping again.
Avery is so excited for Santa, but she does say, "I am a little shy to Santa." Meaning, don't put me on that guys lap again. Every year she throws a fit, yet we keep going back! We are such mean parents!
Hopefully today is uneventful and we won't post again....
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