My mommy brain is in full effect. I forgot to update everyone on Avery and her appointment. When we went to see Dr C at Cooks I learned some new information. Mike and I were worried Avery's wheezing was going to put her in the hospital. Evidently it is common for CF patients to have "asthma like" symptoms. So her occasional wheezes are not to be alarming. She did her PFT and was above 100% again. He said he thought something was going on in her chest but we were on the forefront of it. He put her on steroids and an oral antibiotic. She seems to be okay. The cough is still going on and a few wheezes. But okay.
We saw Dr C on a Tuesday and by Saturday she had a fever and was extremely tired. We got a call on Sunday that Avery's teachers were out with type A flu. We ended up going to Acute Care Kids (they were amazing) and she tested positive for the same flu. So evidently her flu shot didn't work. She was on Tamiflu and was really only sick for 2 days. Although she was doing much better Dr C wouldn't let her go back to school for 7 DAYS! We had a fun week of hanging out together:)
So really she is doing well and I need to realize I don't always have to freak out. She is going to have new symptoms pop up and we will learn along the way. Whenever you think you can handle this disease it give you a little wake up call to make you realize you dont' know everything!
On a side note our Team Air for Avery is up and running! We would love for you to join us walking this year on May 18th at 9am at Fair Park. We all wear our blue Team Air for Avery shirts and have a great time celebrating this wonderfully strong girl, Avery. Please think about walking with us. Here is the link:
www.cff.org/Great_Strides/AbbyGray
Also you can donate on this page as well. This disease is still taking the lives of CF patients. We need to find a cure. We can only do that by funding research, which is done by people like you. If you can donate even $1 we would appreciate it.
