Clinic Visit

It has been a long time since my last journal entry. This is always a good thing...that means no issues.
We are headed to Cooks today for Avery's big yearly check up. She gets a chest x-ray, blood work, and a pulmonary function test (when she gets older). I am a bit nervous about today's visit. Avery started a cough on Saturday and it doesn't sound good. We have increased treatments to 3x a day and it is not doing better. She had a rough night's sleep tossing and turning. She doesn't have a fever so that is good.  We shall see.

Mike and I also made the decision to stop pumping her with formula. The reason being that we want her little body to tell her when she is hungry. She has had her feeding tube since she was 10 months old. We thought maybe this was a leading cause into her not eating enough. We have seen a little improvement, but my gut tells me the CF clinic will say it is not enough and ask us to start pumping again.

Avery is so excited for Santa, but she does say, "I am a little shy to Santa." Meaning, don't put me on that guys lap again. Every year she throws a fit, yet we keep going back! We are such mean parents!

Hopefully today is uneventful and we won't post again....