Last night we had the PICC line placed. It didn't go as smoothly as we had hoped, but it is in. Avery had two blood draws this morning and so we had a rough morning.
Since she had such a rough couple of days we took her to Build a Bear and Jingle Bear was born. Daddy rigged her tricycle with the box and now Jingle Bear goes where Avery goes. They even did vitals on Jingle Bear tonight and she is doing very well, although her blood pressure is 0 over 0.
We got to see an orchestra play downstairs with beautiful Christmas music. They let a little boy be the conductor at the end. He was so weak that the conductor had to move his arm for him. Tears.
Nanie came today and helped Avery make a Christmas chain for her room. Avery's face when Nanie came in was a breath of fresh air.
After peaking in other rooms we are sadly behind on Christmas decorations. We are going to step up our crafts to make it more homey. So that will be our goal the next few days.
We are doing shaky puff-puffs for the last time today and then lights off for bed. We are going to bed in good spirits. Thank you for all of the prayers and sweet words. It lifts us up.
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